Health Informatics Discussion Forum

Use of EMRs in resesarch

Two new publications of interest:Beyond 'Meaningful Use': EHR Data in Researchhttp://www.ihealthbeat.org/perspectives/2010/beyond-meaningful-use-ehr-data-in-research.aspxDevelopment and Validation of an Electronic Health Record–Based Chronic Kidney Disease Registryhttp://cjasn.asnjournals.org/cgi/content/abstract/CJN.04230510v1What are others experience?

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  • Hi John, thanks for sharing these links. I think we're going to see rapid uptake of the use of EHRs for research. EHR datamining is a valid form of finding patterns and trends that could lead to new ideas about causes and associations of diseases. We will still need randomised prospective trials to confirm any suspicions about patterns found in EHR data but these trials could be conducted using the EHR as the method of recording the data. At the University of Auckland, we have been using GP (family doctor) EMR data for some time for our research e.g. http://www.ncbi.nlm.nih.gov/pubmed/20529470.
  • Hi John

    A very good Article. utilizing EHR in research is a very useful and basic achievement if the data is reliable and guaranty consistency. Having a Data warehouse where all the data from EHR,PACS and other systems saved to reuse it in research is essential. If any organization fail to create Data ware house it fails to have full information I think.

    I am a student in Health Informatics from Saudi Arabia and this is my observation to a current situation in one of the organization here.
  • Hi John:

    Your article was very helpful to me as a nursing student, currently learning about the benefits of EHR in my Nursing Informatics class. With the evolving role of the internet in healthcare, the idea of using EHR in research is very promising. EHRs allow information to be stored in large capacities and for long period making it accessible at anytime and from anywhere - home, hospital or office. I can appreciate the de-identifying of patient's information to protect their privacy. I am in support of any system with the aim of improving the quality of life and optimizing care for my patients, this I can envision from utilizing EHR in research.
  • You might look at this site:
    http://e-patients.net/
    AHIMA has done alot of work in this area:
    http://library.ahima.org/xpedio/groups/public/documents/ahima/bok1_...
    and http://www.myphr.com/
  • Hi

    Thank you for this inspiration. For more than 10 years we are using EHR/ EMR as the primary resource for researches. 8 Medical research institutes and 2 national registries are among of our research network. We have developed EHRs with research as primary focus and we are eager to learn more and to share what we learned in the field.

  • I believe the organization with the most research facilitated by a robust  EHR would be Kaiser-Permanente. In the past two years at least three articles have appeared that show how they can use an EHR and disease registry to monitor a variety of chronic diseases. The paper that caught my attention was by Brian Lee in the BMJ where they were able to use all of the EHR tools to increase early referrals to the specialists for management of chronic kidney disease. This represented a unique "specialty driven population health" initiative in an integrated delivery system that would not have been possible without an enterprise level EHR and disease registry.....Bob
    • Thanks for the heads up on this article
      http://www.bmj.com/content/339/bmj.b2395

      Yes, Kaiser is taking the lead on the secondary use of EMR data with one of the largest EMR installations. Have you read Connected for Health about their EMR implementation?

      • Thanks for the tip about the book (just ordered the paperback). Although Kaiser is in the forefront of using aggregated data generated by its robust EHR system, the Cleveland Clinic has also been a leader. I very much enjoyed reading your article on the CK disease registry at the Cleveland Clinic and the excellent discussion about clinical and administrative data reuses. In the Introduction to Medical Informatics course I am currently teaching we can use this type of article in the EHR, Disease Management and E-research modules. I'll also post it in the Disease Management section of our online free resource site . Cheers.....Bob
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